Tuesday, August 7, 2007
You asked for it!
Welcome to my latest effort to reach out and offer reassurance, advice and my service to those about to go through vitrectomy surgery and the misery of face down positioning. I started Kelly Comfort Solutions, specializing in face down recovery equipment, in 2002 when I saw the need to do SOMETHING to help the poor folks coming in after surgery in such discomfort, not from the surgery itself, but from holding their head in a position that is sheer torture to the neck and back muscles. My company has grown from a local service to a nationwide distibutor of both rental and purchase items to help make the recovery at least a little more comfortable. No one is going to tell you they breezed through macular hole recovery because they had devices to help support the weight of their head for a week or more, but certainly I have been told by more than one person they don't know how they could have done without it. To be fair, others have also said they COULD have done it without equipment, but they are definately fewer in number. But that is not what this blog is about. I have had MANY people say to me " I have never heard of this problem before" and true, macular holes are not everyday problems like, say, cataracts. People want to talk to others who are going through, or better yet, have been through, the procedure and the fears and the recovery. That is what this format is all about. So, let's here from you!
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I got a great idea from one of my customers yesterday. She said she used the Mobile Support at the BACK of her neck because it kept her from raising her head up. She didn't have a computer so I told her i would share her idea with everyone here.
ReplyDeleteToday I sent out some e-mails to past customers asking for feedback on The Economy Vitrectomy Kit. I called a few folks too. I hope to share some of the comments here soon. If you have any comments please feel free to add them. Thnak you!
ReplyDeleteGood news! The majority of feed back was good! Honestly, I expected more suggestions for improvement. Alas, most were sufficiently satisfied with their purchase. I did have one person say they wore the face support out but didn't have much use for the rest of the kit. But the majority were content and would use it again. Oh Happy Day! Do you have any comments on your experience? Please share!
ReplyDeleteMy husband cancelled his surgery yesterday. He thinks he has had a MH for over 4 years. He only just realized he had distorted vision when after many pairs of glasses didn't help. He actually had to tell the eye Dr that the print in emails where distorted over and over again, and that is when the Dr looked even deeper into his eye and suspected MH. He was then referred to a specialist. We went for another opinion and the same bad news was given so he chose to have surgery. The night before surgery he realized that after 4 years the hole or should I say his distorted vision hasn't gotten worse, so why should he risk having surgery that may or may not work, or could even make it worse, and that it will eventually lead to cataract surgery and lens replacement with in a year or two. He also feels that it may be getting better after using steroid drops for only 30 days. (Recommended by Dr before electing to get surgery) Do you think that after this many years his hole will not enlarge and that another round of steroid drops will help, or even stop the hole from enlarging? I've read all the good and bad responses in many blogs and quite frankly it seems sometimes it may be better to just wait it out. He see's quite well out of that eye now, only a little distortion. Can't he just be monitored monthly to see if the hole is enlarging? He is really struggling with this. We shipped your equipement back today, which seemed to be the answer if he had gone through with the surgery. Do you have any cases where the hole edges healed and the patient is doing fine and maintaining the same vision for many years? Thank you in advance for your responce.
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