Bilateral Macular Holes

duckdown said...
i need to say that i have a macular hole in baoth eyes at the same time and although i have had surgery in one eye *unsuccessful( and am going through another one in the same eye i feel not enough is ever said about what you can do about not having an operation an just learning to live with the problem. so you cannot dirve read or watch tv so what there are loads of other things that you ccan do. i am not abeing negative and if you only have this condition in one eye then go for it but in two eyes (1 in 5 million) think again.
Toni Kelly said...
To Duckdown:Choosing to go through with any type of surgery is always a matter of personal choice. While macular holes rarely cause complete blindness they can very definately cause significant visual impairment and legal blindness. For many, I dare say most, not being able to read or drive is a condition not given into without at least trying to fix the problem. Certainly most of the viewers of this blog are interested in trying to fix the problem, which is why you are not reading more comments about dealing with the disability. You can probably find more information about coping with vision loss through macular degeneration support groups. I am guessing you won't find any blogs about it because it is so very hard for victims of that disease to see a computer screen!But let's talk about you and your particular case, bilateral macular holes. Yes, it is unusual to get a MH in both eyes, but not unheard of at all. There is no one who will argue that MH recovery is difficult, and to have gone through one without success must be extremely discouraging. You alone can decide what limitations you can live with as well as how much you can endure in an effort to retain functional vision. I would encourage you however to try to find the strength within you to give both eyes a chance. Do you think you could try to endure another two weeks of misery for the chance of good sight? You may sail through this time. Try to keep your spirits up, your figurative heart and your powerful brain hold the key to many of your physical defeats and successes! Let me know how your story goes, Duckdown.